Author Archives: Utting Wolff

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About Utting Wolff

The people behind Utting Wolff Spouts are Geoff Jones and Claudia Gillberg, the former a masters student in medicinal chemistry and the latter a PhD in Education. As teenagers we were both hit by myalgic encephalomyelitis and our combined experience of (living with) this illness gives us a bit of an insight into an array of fields. As we have managed to muddle our way through to a number of degrees, job titles and countries we fancy ourselves slightly qualified to spout on science, medical, societal, social, political and cultural matters on occasion. Follow us on Twitter at @DrCGillberg and/or @geoffbiosci.

TRIBUNAL ORDERS RELEASE OF PACE TRIAL DATA (QMUL v the IC and Matthees)

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Valerie Eliot Smith's avatarvalerieeliotsmith

HMCourtTribunalServicePicThe First-Tier Tribunal judgment in this case (click on that link to read full judgment) has just been published. QMUL’s appeal has been roundly dismissed and therefore the Tribunal has decided that the requested data from the PACE trial should be released.

I have just skimmed the 48 pages of the judgment and so have only taken in a small amount so far. However, it appears that this is a defining moment for the international ME community and the PACE Trial. Alem Matthees (the original requestor of the data) has done an extraordinary job.

However, it is important to remember that, in theory,  QMUL could still seek leave to appeal against this judgment to the Upper Tribunal so it will be a bit longer before we can be absolutely certain that this judgment will stand.

I will write a longer post with a more detailed analysis in due course…

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